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05/15/2024 11:13 AMPress Release, Town of North Branford
North Branford Mayor Rose Angeloni and Town Manager Michael Downes joined with North Branford’s Ashley Fernandez, regional coordinator for the Cornelia de Lange Syndrome (CdLS) Foundation, and her daughter Lindsey who was diagnosed with CdLS at the age of 18 months, to promote awareness about CdLS.
Angeloni and the North Branford Town Council issued a proclamation declaring May 11 as International Cornelia de Lange Syndrome Awareness Day in North Branford.
Cornelia de Lange Syndrome is a little-known genetic disorder causing children to be born with a low birth weight, develop slowly cognitively and physically, and experience numerous medical complications. An estimated 30,000 men, women and children in the U.S. have CdLS and are undiagnosed or are without support services.
North Branford is proud to join in the national effort to promote awareness of CdLS and to seek positive and productive impacts on the lives of people with CdLS and their caregivers.
PHOTO: L-R: Ashley Fernandez, Lindsey Fernandez, Mayor Rose Angeloni, Lilly Fernandez, and Town Manager Michael Downes.